Main description:

This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient's disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives.

Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process - youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study.

Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.

Contents:

Chapter 1. Introduction: Historical Perspectives, Current Priorities, and Health Care Transition Evidence and Measurement Chapter 2: The anatomical, hormonal and neuro-chemical changes that occur during brain development in adolescents and young adults

Chapter 3: The relationships of adolescent behaviours to adolescent brain changes; and their relevance to the transition of adolescents and young adults with chronic illness and disability

Chapter 4. Healthcare Transition from the AYASHCN's perspective

Chapter 5: Health Care Transition from the Family Perspective

Chapter 6. Healthcare Transition from the Pediatric Provider's Perspective

Chapter 7: Healthcare Transition from the Adult Provider's Perspective Barriers to accepting AYASHCN in the practice

Chapter 8: Healthcare Insurance Changes

Chapter 9. Establishing the Administrative Structure and Support for a Healthcare Transition Program

Chapter 10: Mobilizing Pediatric Providers

Chapter 11: Developing a Transition Policy, Procedures or Guidelines

Chapter 12: Establishing a Method to Monitor Transition Planning and Track Patient Outcomes Following Transfer

Chapter 13: Incorporating Healthcare Transition Readiness Assessment

Chapter 14. Employing Healthcare Transition Planning Tools

Chapter 15. Understanding the Pediatric and Adult Healthcare System: Adapting to Change

Chapter 16. Developing the Process for Transferring Care from Pediatric to Adult Providers

Chapter 17. Preparing the Adult Practice to Accept AYA

Chapter 18: Establishing a System for Ensuring Transfer Completion

Chapter 19. Defining Successful Transition: Young Adult Perspective

Chapter 20. Defining Successful Transition: Parent Perspective

Chapter 21. Defining Successful Transition: Pediatric Provider Perspective

Chapter 22. Defining Successful Transition: Adult Provider Perspective

Chapter 23. Defining Successful Transition: Payer perspective

Chapter 24 Financial Cost of Healthcare Transition

Chapter 25. Payment for Health Care Transition Services

Chapter 26: Healthcare Transition and the Medical Home

Chapter 27. The Hospitalist's Perspective on Healthcare Transition

Chapter 28. The International Perspective on Health care Transition

Chapter 29: Expanding the Role of the Pharmacist

Chapter 30: Legal Issues: Guardianship and supportive decision making

Chapter 31. Transitioning Adolescents and Young Adults with Medical Complexity

Chapter 32. Transitioning Youth with Cognitive and Intellectual Disabilities

Chapter 33: Palliative Care in Adolescents and Young Adults with Special Healthcare Needs

Chapter 34: Healthcare Transitions and Dental Care

Chapter 35. A Successful Healthcare Transition Program in a Hospital Setting

Chapter 36: Different Healthcare Transition Models

Chapter 37: Conclusions