Main description:

This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident.
This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents' experiences of what they consider helpful or not so helpful are interwoven throughout the chapter.
There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.

Contents:

Neonatal Palliative Care for Nurses

Alexandra Mancini, Jayne Price, Tara Kerr-Elliott

Dedication

Foreward

Julia Downing

Preface

The Editors

Contributors' list

Acknowledgements

NN Panel

Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care

Chapter 1. Introduction to Neonatal Palliative Care

Neil Marlow*, Katie Gallagher

Corresponding author's e-mail: n.marlow@ucl.ac.uk

Chapter 2. Exploring the Concept on Neonatal Palliative Care

Brian Carter, Amy Kuelbebeck*

Corresponding author's e-mail:

Chapter 3. Support for Staff: Building Resilience in Nurses

Rachel Black*, Arlene Honeyman

Corresponding author's e-mail: Rachelblack@orpheus.org.uk

Chapter 4. The Importance of Effective Communication on the Neonatal Unit

Paula Abramson*, Alexandra Mancini

Corresponding author's e-mail: paula.abramson@childbereavementuk.org

Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family

Revd Dorothy Moore-Brooks*, Tara Kerr-Elliott

Corresponding author's e-mail: dorothy.moorebrooks@gosh.nhs.uk

Chapter 6. Ethical Concepts in Neonatal Palliative Care

Vicki Xafis*, Karen Brombley

Corresponding author's e-mail: Vicki.Xafis@health.nsw.gov.au

Chapter 7. Legal Issues in Neonatal Palliative Care

Rebecca Fitzpatrick*, Ben Troke

Corresponding author's e-mail: Rebecca.Fitzpatrick@brownejacobson.com

Chapter 8. The Principles of Genetics within Neonatal Palliative Care

Aoife Bradley

Corresponding author's e-mail: aoife.bradley@belfasttrust.hscni.net

Chapter 9. Antenatal

Sam Collinge*, Elizabeth Bailey

Corresponding author's e-mail: Sam.Collinge@uhcw.nhs.uk

Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background

Claire Campbell

Corresponding author's e-mail: Claire.campbell@nuth.nhs.uk

Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project

Nicholas Embleton*, Sarah Stephenson

Corresponding author's e-mail: Nicholas.embleton@newcastle.ac.uk

Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse

Katie Gallagher*, Lisa Leppard

Corresponding author's e-mail: katie.gallagher@ucl.ac.uk

Chapter 13. Advance Care Planning

Jonathan Downie*, Tara Kerr-Elliott, Finella Craig

Corresponding author's e-mail: jonathan.downie@nhs.net

Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care

Angie Scales

Corresponding author's e-mail: angie.scales@nhsbt.nhs.uk

Chapter 15. Continuing Emotional and Practical Support for the Whole Family

Anne Harris

Corresponding author's e-mail: anne.harris@rainbowtrust.org.uk

Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care

Linda Maynard

Corresponding author's e-mail: linda.maynard@each.org.uk (found via Google, to be confirmed)

Chapter 17. Collaboration between Neonatal Units and Children's Hospices - Exploring Opportunities for Potentially Improving Care and Offering Choices

Jayne Price*, Rosa Menizabal-Espinosa, Jacqui Morgan, Anna Spicer, Katrina Williams

Corresponding author's e-mail: j.e.price@sgul.kingston.ac.uk

Chapter 18. Interdisciplinary Working in Neonatal Palliative Care

Patricia McNeill*, Jacqueline Johnstone, Frances Gilmore

Corresponding author's e-mail: p.mcneilly@qub.ac.uk

Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice

Sharon Nurse*, Julie Ling, Valerie Peacock

Corresponding author's e-mail: s.nurse@qub.ac.uk (found via Google, to be confirmed)

Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination

Rachel Black*,Tara Kerr-Elliott, Lydia Judge- Kronis, Neil Sebire

Corresponding author's e-mail: docrachelblack@gmail.com

Part II. Achieving Quality in Neonatal Palliative Care Internationally

Chapter 21. Introduction

Joan Marston

Corresponding author's e-mail: joan.icpcn@gmail.com

Chapter 22. Australia

Victoria J. Kain

Corresponding author's e-mail: v.kain@uq.edu.au

Chapter 23. Kuwait

Tracie Dempster

Corresponding author's e-mail: tracie.dempster@bacch.org

Chapter 24. India

Mary Ann Muckaden

Corresponding author's e-mail: muckadenma@tmc.gov.in

Chapter 25. Malaysia

Lee Ai CHONG*, Azanna AHMAD KAMAR, Hasimah MOHD YATIM, Halimatun Saadiah HASHIM

Corresponding author's e-mail: leeailah@yahoo.com

Chapter 26. South Africa

Julia Ambler

Corresponding author's e-mail: julia@umduduzi.co.za

Chapter 27. Ireland

Claire Quinn*, Marie Lynch

Corresponding author's e-mail: claire.quinn@nuigalway.ie

Chapter 28. The Netherlands

K.A. Bergman, A.T. Wedzinga-de Vries, A.A.E. Verhagen*

Corresponding author's e-mail: a.a.e.verhagen@UMCG.nl

Chapter 29. Germany

Ulrike Lindwedel-Reime, Sabine Kraft*

Corresponding author's e-mail: kraft@bundesverband-kinderhospiz.de

Chapter 30. Singapore

Majella Irudayam*, Lim Sok Bee, Rahimah Bte Bujal, Ann Toh

Corresponding author's e-mail: majella.irudayam@kkh.com.sg

Chapter 31. Ukraine

Andrey Penkov

Corresponding author's e-mail: andrey_penkov@mail.ru

Chapter 32. Argentina

Rut Kiman

Corresponding author's e-mail: rkiman@gmail.com

Chapter 33. Italy

F. Benini* , F. Rusalen, M.E. Cavicchiolo, S. Salvadori, P. Lago
Corresponding author's e-mail: franca.benini@sanita.padova.it

Chapter 34. Scotland

Evelyn Rodger

Corresponding author's e-mail: EvelynRodger@chas.org.uk

Chapter 35. France

Dr Pierre Betremieux

Corresponding author's e-mail: pierre.betremieux35@gmail.com

Support Organisations

Index